top of page
Inside this Book

If you make use of this material, you may credit the authors as follows:

Krutzinna Jenny and Floridi Luciano (Editors), "The Ethics of Medical Data Donation", Springer Nature, 2019, DOI: 10.1007/978-3-030-04363-6, License: https://creativecommons.org/licenses/by/4.0

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.

Keywords

Medicine, Medical Policy, Social Policy, Philosophy

Rights | License

Except where otherwise noted, this item has been published under the following license:

You might also be interested in the following books from Amazon:

Takedown policy:

If you believe that this publication infringes copyright, please contact us at info@jecasa-ltd.com and provide relevant details so that we can investigate your claim.

!
Widget Didn’t Load
Check your internet and refresh this page.
If that doesn’t work, contact us.
!
Widget Didn’t Load
Check your internet and refresh this page.
If that doesn’t work, contact us.
!
Widget Didn’t Load
Check your internet and refresh this page.
If that doesn’t work, contact us.
bottom of page