Brilliant Imperfection: Grappling with Cure
Eli Clare
Top 10 Best Quotes
“Let me remind all of us--disabled and nondisabled--that every time we defend our intelligence, we come close to disowning intellectually disabled people. We imply that it might be okay to exclude, devalue, and institutionalize people who actually live with body-mind conditions that impact the ways they think, understand, and process information. The only way out of this trap is to move toward, not away from, intellectually disabled people, to practice active solidarity.”
“Sometimes disabled people overcome specific moments of ableism— we exceed low expectations, problem-solve lack of access, avoid nursing homes or long-term psych facilities, narrowly escape police brutality and prison. However, I’m not sure that overcoming disability itself is an actual possibility for most of us. Yet in a world that places extraordinary value in cure, the belief that we can defeat or transcend body-mind conditions through individual hard work is convenient. Overcoming is cure’s backup plan.”
“But in today’s world, being seen as intellectually, cognitively, or developmentally disabled is dangerous because intelligence and verbal communication are entrenched markers of personhood.”
“The brutal consequences of "monkey" arise because that word removes some of us from humanity, placing us among nonhuman animals in the natural world. "Monkey" strengthens racist, ableist, and speciesist hierarchies. Once a person is deemed not human, then all sorts of violence become acceptable.”
“Simply put, diagnosis wields immense power. It can provide us access to vital medical technology or shame us, reveal a path toward less pain or get us locked up. It opens doors and slams them shut.”
“Our body-minds tumble, shift, ease their way through space and time, never static. Gender transition in its many forms is simply another kind of motion. I lived in a body-mind assigned female at birth and made peace with it as a girl, a tomboy, a dyke, a queer woman, a butch. But uncovering my desire to transition—to live as a genderqueer, a female-to-male transgender person, a white guy—challenged everything I thought I knew about self-acceptance and love.”
“If the U.S. government and nonprofit organizations, private corporations and university laboratories are going to dedicate money and time to the future, they also need to do so for the present. They need to fund accessible buses, schools, classrooms, movie theaters, restrooms, housing, and workplaces. They should support campaigns to end bullying, employment discrimination, social isolation, and the ongoing institutionalizing of disabled people with the same enthusiasm with which they implement cure research. I want money for accessible playgrounds, tree houses, and sandboxes so that wheelchair-using kids aren't left twiddling their thumbs in the present while they dream of running in the future. If we choose to wait for those always-just-around-the-corner cures, lavishing them with resources, energy, and media attention, we risk suspending our present-day lives.”
“Cure dismisses resilience, survival, the spider web of fractures, cracks and seams. Its promises hold power precisely because none of us want to be broken. But I'm curious: what might happen if we were to accept, claim, embrace our brokenness?”
“Simply put, the DSM is a highly constructed projection placed on top of particular body-mind experiences in order to label, organize, and make meanings of them from within a specific worldview.”
“I wont write the details or try to capture the error and pain in wors. But believe me: what they did broke my body-mind. It shaped every part of my life. This is not a hyperbole, not a claim to perpetual victimhood nor a ploy for sympathy, but rather, an enraging truth.”
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Book Keywords:
body-mind, self-love, intelligence, disability, cure, gender, diagnosis, ableism, genderqueer, transgender, self-acceptance, dsm, categorization, disability-studies, personhood, disabled
